Bull Cancer. 2021 Nov 12:S0007-4551(21)00440-9. doi: 10.1016/j.bulcan.2021.09.016. Online ahead of print.
ABSTRACT
INTRODUCTION: Over the last 40years, the French health system has opened up to patient engagement. Society has recognised the legitimacy of the patient as a decision-maker in his or her own health and as an expert in his or her illness. This is true at the individual level in the context of doctor-patient relationship, and at the organisational level within institutions, in decision-making or academic groups. The aim of this study is to present the concepts of patient-partnership, patient education and to illustrate the different functions that patient-partners can take within the organisation of patient education programmes, and in the field of oncology.
METHOD: A narrative review of the literature was carried out to extract relevant and recent seminal articles to address these points.
RESULTS: The Montreal mo del establishes the patient partner as a full care actor. He can thus contribute his expertise in many fields of application: care, research or teaching. The aim of patient education is to empower the patient in the management of his or her disease, treatment and the consequences of these on daily life. The patient partner has a full place in this system where he can accompany his peers, but also collaborate with the educational team to develop new programmes, evaluate them and even conduct research. The implementation of these systems consists of getting individuals with different cultures and operating methods to work together. It is a process that requires time, effort and attention to each other.
PMID:34782118 | DOI:10.1016/j.bulcan.2021.09.016
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